So eleven days after my last post things have moved on. Albeit glacially, but given I now have use of a few more fingers, I know there has been progress.
For a start it looks like a diagnosis. I definitely have a virus, and not in the vague, generalised way that doctors often insinuate you have one for unknown or unclassifiable conditions. No, I have Hepatitis E no less. Usually quite a mild illness, although I have hardly any of the symptoms that usually present. Maybe a bit of fatigue, but given the state of arms and concomitant analgesic consumption, it’s hard to tell the source of that. But the latest (of numerous) blood tests threw it up on Thursday, it also explains the raised liver inflammatory markers when there are no other signs of liver inflammation. It must have happened deep within said organ.
It may also offer an explanation for the rapid onset of excruciating pain throughout my shoulders and arms in the last few days of January. The key symptoms of rapid onset, that is, within 12 to 24 hours and no prior warning, coupled with the severity, and location, all point to Brachial Neuritis, an autoimmune response that, guess what, is often triggered by a virus. I’ll have a clearer idea on Thursday when I have my arm nerve conductivity tests (I hope), together with shoulder x-ray and further blood tests. Even if it isn’t that, my arms are not snapping back to life, so I suspect we still need to do what we can to find a cause.
The acute pain is gone, and I’ve cut back on the smarties, as my arms and shoulders are still inflamed, stiff and sore. Sleep has been a big problem, but even that is improving, aided by hot bath, hot chocolate and pillows placed at strategic points in the bed.
I realise I’m probably getting close to some unpleasant physio, but I’m hopeful that the damage to the nerves is not as bad as I first feared. I still have lots of paranoid thoughts about nasty conditions I may have, as well as bouts of pessimism that this will be a permanent thing. But given I have managed two short walks in the last four days, lends optimism that there is a way back.
My family have been amazing, friends near and far have sent wonderfully supportive messages and encouragement, and my boss and colleagues have been quite simply outstanding. Better than any employer I’ve ever had, and that is high praise indeed. My boss even phoned me one late afternoon to tell me I was doing too much. You can’t buy that.
If you were one of those people who has listened, sent encouragement, good wishes or anything, then thank you, it has been an amazingly powerful in keeping my spirits up like you will never understand. In a cold, dark tunnel, with an icicle hanging over me, you were the light I moved towards. Like this metaphor.
Despite all of this, I’m still in the tunnel, and it’s still a horrible place to be in. I may not have the apocalyptic fear I had 24 hours into this episode. I also know my disablement is mild compared to those of others, and that I am fortunate to have money and resources to be able to tackle it. But the transformation that means I can not turn a key in a lock, or get a tin of soup from the middle shelf, is a stark contrast to the very fit state I had got myself into by the 3rd week of January. But I am grateful I can do things I could not do two weeks ago, velcro shoes are wonderful things.
Since I had my diagnosis of prediabetes at the beginning of December I had lost 4 kg, migrated to a very healthy diet, really upped the level and type of exercise, as well as curbed my enthusiasm for chocolate. Who knows, maybe that level of fitness has afforded a measure of protection. But it feels like a major setback from what I could do before. Knowing what I have and how to tackle it helps, sure, but it is not easy. One very major positive is that all that work has paid off in getting my blood sugar down to normal levels, albeit towards the top of the normal range. It shows I can reverse that.
So yes, it’s got better. I hope it continues as my fragile confidence can not take much in the way of physical setbacks. But I suspect it’s not going to be an easy Few months. That said, I’m determined in my usual way to face it and KBO as one of my friends would say. It’s what I do.
So please continue to send messages like this.
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